Taylor’s bday post 12/23/22

 It is officially Christmas Eves eve, and that means that this sweet face turned 12!!  From the moment Taylor was born she just had a little extra sparkle that she loved to share with anyone who came into contact with her.  I like to think of it as “Taylor confetti” she just radiates her love for life, and she kind of tosses it around as she goes about her day… it makes people smile.  Her greatest joy is when she can give gifts to those she loves.  She gives the best hugs and knows innately how to make people feel special.  It’s kind of mind blowing that she is now a survivor of 2 deadly diseases- neuroblastoma and esophageal varices.  She doesn’t let it get her down, and being a victim isn’t even something that would ever cross her mind. Words that come to mind when I think of Taylor are: strength, happy, joy, funny, love, beauty, thankfulness, empathy, energy, and kindness.  She’s such a special kid and I am so thankful that God is using her story in such a huge way.  It makes her hardships seem like they have a purpose.  I’m EXTRA thankful this year that she is HERE to celebrate her birthday (and then Christmas) with her.  Those eyes and sweet face captured my heart from the moment I first held her in my arms.  She’s such a gift and I will always be so grateful for every single day that we have her.  I didn’t know, that on Dec 23, 2010 when I gave birth to Taylor, that she would become one of my favorite heroes.  Happy birthday, sweet girl.  We love you so, so much!


**Taylor has been doing good since we came home from her last hospitalization.  We don’t know a whole lot of what’s going on inside of her until she has a scope on the 12th and then her big surgery on the 23rd.  Her hip is still causing her a lot of pain (for those that don’t know, she slipped off the high dive this summer and slammed her hip on the way down, it’s caused a pretty severe injury).  We are seeing a couple chiropractors for it.  They do know what’s going on with her hip, but its just taking a lot of time to fix.  They are both cofident that they can help her though.  Thank you so much for praying!!  I find it miraculous that she hasn’t had another bleed.  I truly believe it’s all the prayers.  Thank you for all who have given to us.  We have had a string of not great things happening this past month and are so thankful for those who have given, so that we can fix all the things and not worry as much about all that, so that we can focus on Taylor getting well.  Anyway, we so appreciate you all!! 


Enjoy Christmas!!  Don’t forget that because Jesus came as a baby in human form- for the purpose of being a sacrifice for our sin upon the cross someday- - that we have the hope of Heaven!  Make sure to tell Him “thank you” while you are celebrating this weekend!

Comments

Post a Comment

Popular posts from this blog

Bad things kept happening 12/25/22

 I’ve been told, by more than one person, to share our “series of unfortunate events”.  I didn’t want to, because I don’t want to sound like I’m complaining or using Taylors situation to make people feel sorry for us… but I feel like maybe I should, to say “look how God has taken care of us, despite allll these things going on!!” And say THANK YOU for those that have prayed and given and encouraged us! So here it goes, it’s long and it starts to get almost humorous because it’s SO MANY things. It all started about 4 months ago.  Across our whole basement and through our garage a giant crack appeared (like broken cement, ran deep!!).  Right around that same time our washing machine, and dishwasher also quit (what should have been a simple installation of the dishwasher turned into a 3 day ordeal!!).  Then both suburbans decided to have twin problems and they both needed new brakes and fuel filters (randy fixed both things on both vehicles).  Not long after t...
Read more

How the second battle began

 This post on Facebook got 1 million comments 😳 Well, I was really hoping we would never need this page again and I planned to keep it closed forever.  However, on Tuesday, Taylor started bleeding heavily so we took her to the urgent care, where she continued to bleed, so we were then sent to the ER.  Over the next few very scary days, we found out by a scope that Taylor has Esophageal Varices.  Since she had such heavy duty chemos during her cancer fight, her liver- unbeknownst to us- had gotten hard.  Since her liver is hard blood couldn’t flow through it.  Her blood rerouted to her esophagus and she developed EV.  During the scope they tied off the bleeders, which put a band aide on the problem, but didn’t fix the blood flow issue.  They did a CT scan to check the liver and then to see if she has a safe way to reroute the blood to her heart.  The plan is to do a surgery to make a new pathway, if her liver is healthy enough.  We don’t...
Read more

12/6/22

 I know some of you were praying very specifically that God would show us a very clear path to take, where we had no doubt that His hand was in it.  He allowed some things to come together in my mind last night, from a Facebook memory.  Along with the fact that we are here with the top surgeon for this surgery, and the circumstances that brought us here- circumstances from a decade ago!!  I even tried to get in the way of God weaving this amazing plan, and he ever so gently moved me out of the way.  Anyway, all that to say, we have so much peace moving forward and I’m feeling ever so loved by the creator of the UNIVERSE, that He would work this plan and then let me put it together in my mind (to give us peace moving forward).  It was a God hug (God hugs leave me 🤯😍🥰).  Thank you for praying!  I will have an update soon about what will be taking place.  the doctors are doing their rounds and will be in here soon! (Taylor fell asleep on my h...
Read more