12/8/22

 We ended up not going home last night.  Taylor’s pain in her chest (from the bands that are tying off the bleeding Varices) was pretty intense.  We opted to stay, so that she could get the meds she needed so that she could stay on top of the pain.  Anyway, she is feeling soooo much better today, and I think we are busting outta here soon!  We will be back for the big scan tomorrow, but that is out patient!  This scan will tell us so much about what they will do for the surgery and when it will be.  I’m anxious and nervous about the big surgery, but looking forward to knowing so that we aren’t in waiting limbo anymore 💓

It’s the big scan day!!  This will tell if she’s a candidate for this surgery, and what plan of action they will take.  So let’s do this 💪🏼 We were in a hurry and Taylor is pretty weak, so we found a little wheelchair in the parking garage.  I kept thinking the elevators were deeper than they were, and each time we got in a new elevator I would crash her into the back of it (not super hard, but it was a decent bump)😅😂 it started to make her giggle because it was so ridiculous, lol!I got a better description of the procedure for today.  They will go through the vein in her neck, down to her liver, so that they can put dye in there and take pictures and see all the vessels and how it’s working.  It will give them a detailed view for surgery.  They will also do some pressure tests too (which I don’t completely understand).  They will also go through her side into her spleen and go across to her liver as there are veins going over.  She has a blood clot in her portal vein which is blocking her blood flow to her liver.  I’m pretty sure the condition is called “Portal Hypertension”.  This procedure from her spleen will show that and other such things that I have forgotten (😬).  Anyway, she will be under for about 1-2 hrs for it.  Then recovery for 4 hrs.  Then home!


Comments

Post a Comment

Popular posts from this blog

Bad things kept happening 12/25/22

 I’ve been told, by more than one person, to share our “series of unfortunate events”.  I didn’t want to, because I don’t want to sound like I’m complaining or using Taylors situation to make people feel sorry for us… but I feel like maybe I should, to say “look how God has taken care of us, despite allll these things going on!!” And say THANK YOU for those that have prayed and given and encouraged us! So here it goes, it’s long and it starts to get almost humorous because it’s SO MANY things. It all started about 4 months ago.  Across our whole basement and through our garage a giant crack appeared (like broken cement, ran deep!!).  Right around that same time our washing machine, and dishwasher also quit (what should have been a simple installation of the dishwasher turned into a 3 day ordeal!!).  Then both suburbans decided to have twin problems and they both needed new brakes and fuel filters (randy fixed both things on both vehicles).  Not long after t...
Read more

How the second battle began

 This post on Facebook got 1 million comments 😳 Well, I was really hoping we would never need this page again and I planned to keep it closed forever.  However, on Tuesday, Taylor started bleeding heavily so we took her to the urgent care, where she continued to bleed, so we were then sent to the ER.  Over the next few very scary days, we found out by a scope that Taylor has Esophageal Varices.  Since she had such heavy duty chemos during her cancer fight, her liver- unbeknownst to us- had gotten hard.  Since her liver is hard blood couldn’t flow through it.  Her blood rerouted to her esophagus and she developed EV.  During the scope they tied off the bleeders, which put a band aide on the problem, but didn’t fix the blood flow issue.  They did a CT scan to check the liver and then to see if she has a safe way to reroute the blood to her heart.  The plan is to do a surgery to make a new pathway, if her liver is healthy enough.  We don’t...
Read more

12/6/22

 I know some of you were praying very specifically that God would show us a very clear path to take, where we had no doubt that His hand was in it.  He allowed some things to come together in my mind last night, from a Facebook memory.  Along with the fact that we are here with the top surgeon for this surgery, and the circumstances that brought us here- circumstances from a decade ago!!  I even tried to get in the way of God weaving this amazing plan, and he ever so gently moved me out of the way.  Anyway, all that to say, we have so much peace moving forward and I’m feeling ever so loved by the creator of the UNIVERSE, that He would work this plan and then let me put it together in my mind (to give us peace moving forward).  It was a God hug (God hugs leave me 🤯😍🥰).  Thank you for praying!  I will have an update soon about what will be taking place.  the doctors are doing their rounds and will be in here soon! (Taylor fell asleep on my h...
Read more