1/12/23

 Taylor has a scope today, with possible banding (if she has any bleeders).  We are scheduled for an overnight stay.  She had her bags all packed and ready to go this morning (the girl is not a light packer, lol).  She’s been feeling pretty good.  We had a wonderful time as a family on our little get away.  God kept her well for it and we are so thankful!  We have a pre surgery physical and meet with the surgeon on the 18th and then her big surgery the 23rd.  I found an online community of people with the same condition as Taylor (portal vein hypertension which causes esophageal Varices) and it’s helped us know what to prepare for.  Taylor isn’t excited about the surgery but she’s ready to get it done.  She even saw photos of what will happen, and it’s pretty intense.  She handled it like a champ, she’s the bravest girl I know!  Let’s do this 💪🏼#TayTheFierce

Comments

Post a Comment

Popular posts from this blog

Being A Friend

 The nice thing about doing a blog and not a book is, I can write in whatever order I want, about whatever I want! Seeing as Taylors airplane ride “go fund me” was a smashing success and we are feeling ALLLL the love, I thought I would write about how to help a friend going through hard stuff.  We have been the recipients of so much generosity and love. One of the hardest things for me when someone has a tragedy strike, is knowing what to do, and what to say to them to make it better.  The thing is, nothing you say or do CAN make it better.  The person is going to hurt no matter what.  BUT, being there and doing means so much.  When Taylor got cancer, I don’t remember anything anyone said to me.  Esp during those first weeks when we were reeling with shock.  I DO remember the people that came, I remember the people that did.  When you are in a state of shock, a lot of times, you can’t even formulate what you need.  So don’t ask, unless you really don’t know.  I literally didn’t know wh
Read more

Round One

 The first week of chemo was so hard.  We were still grappling with the fact that Taylor even had cancer.  The first round (maybe the first two? Funny the details that I forget) were not inpatient.  She would have chemo and then go home and then we would go back the next day for more chemo.  They were still running tests on her so she would get chemo and after it she would have some scan or procedure.  We would spend the entire day at the hospital and then go home late, and get up the next day and repeat the same nightmare over and over again.  We were also going back and forth to see Jeremiah in the NICU.  It was brutal for us, but even more so for her.  The chemo she was getting wasn’t low dose, it was extremely toxic.  She was so exhausted. I also was beginning to really loathe the fact that we kept having to hold her down for painful things to be done her.  She would scream her little head off, and we had to hold her while her port was accessed, or a catheter was put in.  She was a
Read more

Inklings

 I believe moms are created with a gut instinct.  Long before anyone else knows something is wrong, a mom knows.  Months before Taylors illness, I knew, down deep in my soul that something was about to happen.  I had an irrational fear that one of my kids would get cancer.  If a St Jude’s commercial came on, my heart would race and I would feel so anxious, that I couldn’t watch it, and I would change the channel.  Some nights when I checked on the kids before bed, I would linger at their door and wonder which one of them would get cancer.  It’s interesting how surviving a worst fear, is incredibly faith building.   More gut feelings came when I was giving Taylor a bath one night.  Her stomach was huge and the rest of her was so skinny.  It wasn’t right.  I even pointed out her huge tummy to a friend.  There was nothing alarming, it just didn’t sit well with me.  Taylor was also sleeping a lot.  The kids had VBS one week, and Taylor would nap all the way through it.  Then when we got ho
Read more