Intro

 I’ve had people often say, that I should write a book, telling Taylors story.  I’ve thought long and hard about which route to take with it, and I can never figure out what the book would look like.  Would I share advice?  Could I even remember details that would be pertinent in writing a book?  That would be highly unlikely!!  I decided, a blog could be whatever I want it to be, and I could just write and not need a certain “route” or “theme” and if people read it, great!  If not, that’s fine too! 

I don’t even feel like I can share “advice” on how to get through the trauma of a child with life threatening illnesses.  We have not in any way “arrived”, and we are not in any way the authority on the subject.  We are deeply flawed and sinful and selfish people.  We won’t reach any level of perfection until Heaven. We have however “survived” and we have a story to share.  Our family and marriage and faith are still very much intact, and therefore, the glory and honor need to be testified about our Saviors goodness. This is our story, and this is our song- Jesus!  Without this HOPE constantly being chanted in my mind, I don’t know if the three things I listed above would still be intact.  So this is our story!  May all the glory point to HIM. 

Our story begins in late June of 2012…