12/6/22

 I know some of you were praying very specifically that God would show us a very clear path to take, where we had no doubt that His hand was in it.  He allowed some things to come together in my mind last night, from a Facebook memory.  Along with the fact that we are here with the top surgeon for this surgery, and the circumstances that brought us here- circumstances from a decade ago!!  I even tried to get in the way of God weaving this amazing plan, and he ever so gently moved me out of the way.  Anyway, all that to say, we have so much peace moving forward and I’m feeling ever so loved by the creator of the UNIVERSE, that He would work this plan and then let me put it together in my mind (to give us peace moving forward).  It was a God hug (God hugs leave me 🤯😍🥰).  Thank you for praying!  I will have an update soon about what will be taking place.  the doctors are doing their rounds and will be in here soon!

(Taylor fell asleep on my hand yesterday, she wouldn’t let me move it either, lol, she’s so funny 😂)

I don’t have a whole lot of news, but I will share the small amount I have.  Some doctors came in, and one of the doctors was the one who did her scope yesterday.  He is really advocating and helping to push to get the surgery done ASAP, like within the next couple of days.  Taylor is bleeding and it won’t stop until she has the surgery, so let’s get it done!  If we can’t get in soon, we will get sent home today.  She will take some medicine that will slow down her blood pressure to take the pressure of the bleeders.  But going home makes me super nervous and I don’t want to end up here again, with her getting several transfusions.  So prayers that she can have this surgery ASAP.  I asked the doctor how long the surgery is, and he said the surgeon will talk to us about it, but it’s quite complex so he said he estimates it will be a 6-8 hr ordeal.  That makes me nervous to type out.  If she gets this (we need to get that scan still to make sure she’s a candidate, but it’s highly likely), she will have had a surgery dealing with her aorta vein (when she had her tumor resection, her tumor was all wrapped around it) and now a surgery taking out one of her jugular veins 😳 go big or go home, right? 😅

Well, try as they might, there wasn’t room for us to get the scan until Thursday.  She has to have the scan before the surgery.  They will check the veins in her neck and liver to make sure this is a good option.  Anyway; it makes me nervous to go home, but I think Taylor really needs a reset before more hospital time.  She cried frustrated tears earlier, because she’s over all this, she couldn’t stop, poor girl.  So I got her out of bed, she showered, changed clothes, brushed her teeth, and then we got out of the room.  I pushed her in a wagon and we walked the halls for awhile.  That helped her a lot!!  I told her to let the tears fall, it always makes me feel better to get the emotions out.  She’s in better spirits now, and the thought of going home has cheered her up too.  So obviously we want it all fixed and behind us, but Taylor needs some home time 💓. She needs to be strong for this next HUGE step!!