1/16/23

 Taylor had 2 bleeds this morning, so we headed to the ER.  We are waiting in a triage room right now to find out the plan.  We packed bags, anticipating an admission.  She is starting to feel the blood loss weakness.  We were soooo close to making it to the surgery day without a bleeds.  😭😭😭 I will keep ya posted on what goes on 💕 (surgery will still happen, just a great big bummer to be back at the hospital before it happens)

We got into a room at about 5.  Taylor had 2 more bleeds (4 total so far this time).  She had to get two IVs because of a medication that they are running around the clock.  She’s not thrilled about that.  There is some talk about maybe moving the surgery up if they can.  Since we are here and IVs are done, we might as well.  We will know more tomorrow when the liver team is here.  We are all for that!  When Taylor had her first bleed she started crying and saying she just wants her surgery (so that she doesn’t have to deal with all this anymore).  I was waiting for the hospital to call back and she had a second bleed.  I told her she might want to go pack a bag.  She said “I already did” so mature 😭 she hates the hospital and the banding and the bleeds, the upcoming surgery is scary… but she knew that’s what she had to go do.  She is getting some medicine to help stop the bleeding.  Her stomach is really hurting for some reason too.  Anyway, I will update tomorrow when the doctors do the rounds.  Thanks for praying for our sweet girl 💕 (the picture of her laughing with randy was her feeling terrible, but he stubbed his toe on his way to her bed and she started laughing at him, it was so cute, I snapped a photo ☺️)

Taylor had another big bleed last night (that’s 5 now with this hospital admission), and then threw up (thankfully the throw up didn’t have blood in it).  She’s feeling downright crummy, and had a really rough evening.  They ran zofran a couple of times, because she had so much nausea.  They/we didn’t want blood coming up.  The night nurse was soooo good with her and was so patient.  Taylor slept great once the nausea got under control.  Her hemoglobin dropped down to 6.3 so they have some blood ordered.  Hopefully it will be here soon.  I will keep ya updated on whatever we find out this morning when the doctors do their rounds.


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